At 50 years old, my health began to deteriorate in ways no one could explain. For nearly two decades, I searched for answers. It wasn’t until I was 69 that I finally learned the truth: I have cystic ...
For those who don’t benefit from modulators, the fight against CF can feel isolating and uncertain. Five members of our community share how they’ve transformed their personal struggles into purpose — ...
Living with cystic fibrosis in Pakistan, I held onto hope that Trikafta would one day reach us. Against all odds, it did — and it completely changed my life.
Coming to terms with the reality of my cystic fibrosis as a child stirred a deep fear that I tried to numb for years through substance misuse. But today, I’m grateful to be on the other side, and am ...
The Gateway Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
Breathing problems (also called respiratory or pulmonary problems) affect the lungs and the airways and are the most serious problems associated with CF. The severity of respiratory problems differs ...
Living with cystic fibrosis used to feel discouraging, but I’ve recently learned that these challenges can be my greatest motivation to advocate for the CF community. People often see cystic fibrosis ...
Dear Chair Cole, Ranking Member DeLauro, Chair Collins, and Vice Chair Murray: As Congress resumes its work on the annual spending bills, the 455 undersigned members of the Ad Hoc Group for Medical ...
Being diagnosed with cystic fibrosis-related diabetes shortly after a lung transplant was difficult. But, working with my doctor helped me create a strategy to make it easier. CFRD has a mind of its ...
Your gift matters. Let's accelerate progress together.