Understanding TBCD: A Rare Neurodegenerative Disorder
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Understanding TBCD: A Rare Neurodegenerative Disorder
319.4K viewsJan 3, 2022
TikTokmiracleformax
Understanding TBCD Genetic Disorder in Children
2:06
Understanding TBCD Genetic Disorder in Children
108.4K viewsJan 19, 2023
TikTokpoppy_and_kaylee
Understanding TBCD Gene Mutation and Its Impact
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Understanding TBCD Gene Mutation and Its Impact
391.4K viewsAug 20, 2023
TikTokalifeforleo
Understanding TBCD: A Journey with Houghton
2:51
Understanding TBCD: A Journey with Houghton
149.6K viewsMay 16, 2023
TikTokholtynsmomma
Understanding Poppy’s Rare Genetic Condition: TBCD Mutation Explained
2:32
Understanding Poppy’s Rare Genetic Condition: TBCD Mutation Explained
6.7M viewsJan 13, 2023
TikTokpoppy_and_kaylee
PLEASE help us however you can. TBCD is killing our kids, and we're in the fight of our lives. #TBCD #CureTBCD #NIH #NIHfunding #researchfunding #science #leukodystrophy #raredisease
1:30
PLEASE help us however you can. TBCD is killing our kids, and we're in the fight of our lives. #TBCD #CureTBCD #NIH #NIHfunding #researchfunding #science #leukodystrophy #raredisease
5.3K viewsFeb 16, 2025
TikTokmiracleformax
3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
1:02
3 years ago I just didn’t know… #tbcd #leukodystrophy #childloss #grief
1.9K views1 month ago
YouTubePoppy&Kaylee
0:12
TBCD void edit
292 views1 month ago
YouTubestickman animation
2:33
#tbcd #raregeneticdisorder #oneinabillion | Daily Sunset
39.8K views11 months ago
FacebookDaily Sunset
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12K views · 182 reactions | It also symbolizes my biggest regret #feedingtubeawareness #childlossawareness #griefjourney #medicalmama #tbcd #leukodystrophy | PoppyyandKayllee | Facebook
6.5K views4 months ago
FacebookPoppyyandKayllee
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My journey in TBCD has been a great blessing. #everyonefollowers @highlight | Yurmi Chamroy
627 views7 months ago
FacebookYurmi Chamroy
6:50
A Day in Our Lives: Managing Leukodystrophy
3.5K views3 months ago
TikTokholtynsmomma
1:54
One year….one painful hard heavy year but one year closer to being reunited #childloss #bereavedmother #tbcd #leukodystrophy #tbcdawareness #griefjourney #oneyear
14.6M viewsMay 1, 2024
TikTokpoppy_and_kaylee
6:01
Quick answer- her body went from small spots of pneumonia to only one of her lungs having maybe 25% function. Her seizures were so frequent and almost impossible to control. Leukodystrophys cause the body to not function like a healthy body. Her muscles, organs, and brain couldn’t recover or heal. #leukodystrophy #leukodystrophyawareness #tbcd #tbcdawareness
3.3M viewsMay 29, 2023
TikTokpoppy_and_kaylee
1:07
#Leukodystrophy can make it hard to swallow thin liquids, but Max has to take #Keppra every day. Here's how we make it easier! #dysphagia #TBCD #CureTBCD #tbcdawareness #leukodystrophyawareness #slp #disability #toddlermedicinehack #toddlermedicine #medicalmom #disabilityparenting #respectfuldisabilityparenting
1.3M viewsMay 1, 2023
TikTokmiracleformax
0:53
Poppy's Journey: Navigating Regression in TBCD
621.5K viewsApr 3, 2023
TikTokpoppy_and_kaylee
1:09
She was lost for words🤭 #hospitallife #tbcd #raredisease #geneticcondition #leukodystrophy
473.1K viewsNov 12, 2023
TikTokalifeforleo
0:11
TBCD: You Are Not Alone if You Can't Dunk | Basketball Video
407K viewsJan 17, 2024
TikTokmrbeardeddragon
0:09
#raredisease #tbcdawareness #geneticdisorder #neurologicalcondition #regression #awareness #bringawareness #tbcd
518.4K viewsFeb 24, 2023
TikTokpoppy_and_kaylee
1:39
Thank you @Miracle for Max 🩵 So much of TBCD’s community and strength comes from you. #tbcd #tbcdawareness #leukodystrophy #leukodystrophyawareness #nationwidechildrenshospital
328.9K viewsDec 28, 2023
TikTokpoppy_and_kaylee
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