In this BBC Points West report, Darren and Matt share their powerful stories of living with Friedreich’s Ataxia — a rare, progressive condition affecting balance, coordination, and movement. Dr Paola Giunti from the UCL Ataxia Centre explains how early access to emerging treatments can make a real difference. 🎗️ Ataxia UK funds vital research, supports families, and raises awareness across the UK. 💬 Watch their stories, share widely, and help more people understand Friedreich’s Ataxia. Find ou
1:29
In this BBC Points West report, Darren and Matt share their power…
5.8K views4 months ago
FacebookAtaxia UK
Kelly shares her story living with Friedreich's Ataxia.
0:59
Kelly shares her story living with Friedreich's Ataxia.
3.4K viewsDec 18, 2024
YouTubeBionews
Jacob Thompson’s life took a sharp turn with a diagnosis of Friedreich's ataxia, but his drive never wavered. Once a coach, now an author, public speaker, and future Paralympian, he’s proving that passion can defy any limit. Hear more stories like Jacob's in this week's episode of Kickoff Countdown, available on YouTube or wherever you get your podcasts. Watch the full story HERE: https://cbsloc.al/3KctoTt | WCCO & CBS News Minnesota
1:09
Jacob Thompson’s life took a sharp turn with a diagnosis of Friedreich…
6.2K views6 months ago
FacebookWCCO & CBS News Minnesota
Living with Friedreich Ataxia: Carla, Maria, and Nuria
4:50
Living with Friedreich Ataxia: Carla, Maria, and Nuria
6.3K viewsFeb 12, 2025
YouTubeBiogen
Accessibility shouldn’t require experience — yet so many only see the gaps once rare disease becomes part of their reality. Help us change that. Share this to spread awareness and make our world more accessible for everyone. #Bionews #AccessibilityMatters #InvisibleIllness #ChronicIllnessCommunity #RareDisease | Friedreich's Ataxia News
0:06
Accessibility shouldn’t require experience — yet so many only se…
3K views4 months ago
FacebookFriedreich's Ataxia News
Living with Friedreich's Ataxia: My Journey with a Rare Neurological Disease
0:30
Living with Friedreich's Ataxia: My Journey with a Rare Neurological …
14.2K viewsJun 24, 2024
YouTubeLaughin' At Ya
Navigating Life with Friedreich's Ataxia
0:48
Navigating Life with Friedreich's Ataxia
6.7K views3 months ago
TikTokaimee_2510
4:04
Living with Friedreich Ataxia: Sean's Story
362.5K viewsFeb 26, 2025
YouTubeBiogen
2:21
Living with Friedreich ataxia: Sam's story
20.6K viewsDec 14, 2023
YouTubeBiogen
3:03
Madelyn's Friedreich's ataxia Story
1.9K viewsMar 24, 2020
YouTubeOne:Eight Productions
1:15
Preparing for a 30th birthday is a big deal in the Boon family. Three out …
26.5K viewsAug 27, 2020
FacebookAttitude
1:28
May is Friedreich's Ataxia Awareness Month! FA patient adv…
988 views11 months ago
YouTubeBionews
Friedreich Ataxia - An Introduction
180 viewsAug 21, 2024
vumedi.com
3:16
Living with Friedreich Ataxia: The Van Och Family
126 views4 months ago
YouTubeLexeo Therapeutics
Epic Vlog Journey with Espejo Publico
3K views8 months ago
TikTokmarta.sanchez_
1:34
Living with Friedreich's ataxia (FA)
9.2K viewsSep 21, 2020
YouTubeThe Balancing Act
16:02
Life with a Friedreich's Ataxia Diagnosis | Proof Bread
48.2K viewsNov 16, 2020
YouTubeProof Bread
5:00
Friedreich Ataxia
66K viewsDec 26, 2007
YouTubeangusfrandave
1:55
Kyle Bryant on Living With Friedreich's Ataxia
32.7K viewsAug 28, 2009
YouTubeusfhealth
28:18
Family Living with Friedreich's Ataxia: The Boon Family
463.8K viewsAug 29, 2020
YouTubeAttitude
22:19
Living with Friedreich's Ataxia: Dillon's Story
27.1K viewsMay 22, 2022
YouTubeAttitude
10:15
Jake and Friedreich's Ataxia
52.3K viewsSep 27, 2016
YouTubeRandy Juip
9:21
Behind the Mystery: Friedreich’s Ataxia
103.4K viewsSep 21, 2020
YouTubeThe Balancing Act
9:28
A day in the life of a wheelchair user with Friedreich’s Ataxia
54.1K viewsJul 9, 2021
YouTubeSammy the disabled baddie
12:11
Claire and Friedreich's Ataxia
20.1K viewsMay 11, 2017
YouTubeRandy Juip
1:22
Heroes of Ataxia
87 views11 months ago
YouTubeAtaxia Connection
0:07
Friedreich's Ataxia Awareness and Adaptation
8.7K viewsMar 8, 2024
TikTokamaliemarhaug
Friedreich ataxia: Video, Causes, & Meaning | Osmosis
181.9K viewsFeb 9, 2021
osmosis.org
0:42
Hayden Howard was diagnosed with Friedreich’s ataxia (FA) at just 11 …
948 views7 months ago
YouTubeBionews
6:31
"This is our FAmily": Meet the Juips
12.6K viewsNov 29, 2021
YouTubeFriedreich's Ataxia Research Alliance
See more videos
Static thumbnail place holder