Sanfilippo Children's Foundation
sanfilippo.org.au
Sanfilippo Children's Foundation
Sanfilippo is a rare genetic condition that causes fatal brain damage. It is a type of childhood dementia and most patients never reach adulthood. But there is hope. Researchers around the world are working hard to find effective treatments.
Mar 26, 2020
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#Sanfilippo Syndrome
Sanfilippo Syndrome: What It Is, Signs, Symptoms, Diagnosis, and More | Osmosis
Sanfilippo Syndrome: What It Is, Signs, Symptoms, Diagnosis, and More | Osmosis
osmosis.orgMar 3, 2023
110K views · 1.8K reactions | Sanfilippo syndrome causes unique physical traits. This is why many of our kids look like siblings. #sanfilipposyndrome #rarebeauty | Saving Sadie Rae: Cure Sanfilippo | Facebook
110K views · 1.8K reactions | Sanfilippo syndrome causes unique physical traits. This is why many of our kids look like siblings. #sanfilipposyndrome #rarebeauty | Saving Sadie Rae: Cure Sanfilippo | Facebook
Facebook3 weeks ago
Top videos
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
curesanfilippofoundation.org
Aug 8, 2023
One thing is for sure after the death of Sam Sanfilippo – he will be missed. His employees at Villa Italia Ristorante in Oil City already miss him, and the Venango County community will surely miss him. “As much as the Pizza Villa is an institution, Sam was an institution himself,” State Senator Scott Hutchinson told exploreVenango.com's Ron Wilshire Monday. “He went out of his way to help people.” The restaurant is a local landmark, operating 24 hours per day, seven days per week. The tradition
5:38
One thing is for sure after the death of Sam Sanfilippo – he will be missed. His employees at Villa Italia Ristorante in Oil City already miss him, and the Venango County community will surely miss him. “As much as the Pizza Villa is an institution, Sam was an institution himself,” State Senator Scott Hutchinson told exploreVenango.com's Ron Wilshire Monday. “He went out of his way to help people.” The restaurant is a local landmark, operating 24 hours per day, seven days per week. The tradition
FacebookexploreVenango.com
22.2K viewsApr 26, 2016
9.7K views · 115 reactions | Muskego parents were given a life-changing diagnosis. Their 3-year-old girl has a rare genetic disorder with no cure, but the family is not giving up hope. MORE: https://bit.ly/3Bcmma1 | FOX6 News Milwaukee | Facebook
3:08
9.7K views · 115 reactions | Muskego parents were given a life-changing diagnosis. Their 3-year-old girl has a rare genetic disorder with no cure, but the family is not giving up hope. MORE: https://bit.ly/3Bcmma1 | FOX6 News Milwaukee | Facebook
FacebookFOX6 News Milwaukee
9.7K views2 weeks ago
Sanfilippo Treatment
TODAY is Sanfilippo Awareness Day Please share 💜 💜 What could our Saniflippo kids HOLD ONTO if treatment comes in TIME? 💜 Ellie can continue to jump while listening to “Girls just want to have fun” @fight4ellie 💜 Jacob can continue to run, jump and laugh 💜 @every1lovesjakeyman 💜 Jacob can continue to eat all of his favorite foods! 💜 @christuna810 💜 Lucas can continue to run out to the chicken coop to visit his “bock bocks.” @lishgirlrunner 💜 Emmett keeps singing Old McDonald Had a Farm
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TODAY is Sanfilippo Awareness Day Please share 💜 💜 What could our Saniflippo kids HOLD ONTO if treatment comes in TIME? 💜 Ellie can continue to jump while listening to “Girls just want to have fun” @fight4ellie 💜 Jacob can continue to run, jump and laugh 💜 @every1lovesjakeyman 💜 Jacob can continue to eat all of his favorite foods! 💜 @christuna810 💜 Lucas can continue to run out to the chicken coop to visit his “bock bocks.” @lishgirlrunner 💜 Emmett keeps singing Old McDonald Had a Farm
FacebookHope for Merrick
10.2K views2 months ago
24 reactions | Just another example of loss of language skills from Sanfilippo syndrome. A rare disease that causes dementia and brain damage in children. Every day without the FDA approving access to a treatment means more words and skills lost. And the skills lost now are lost forever. Merrick is fighting so hard against this disease. Why isn’t the FDA? #sanfilippo #raredisease #approvehopenow #autism #childhooddementia | Hope for Merrick | Facebook
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24 reactions | Just another example of loss of language skills from Sanfilippo syndrome. A rare disease that causes dementia and brain damage in children. Every day without the FDA approving access to a treatment means more words and skills lost. And the skills lost now are lost forever. Merrick is fighting so hard against this disease. Why isn’t the FDA? #sanfilippo #raredisease #approvehopenow #autism #childhooddementia | Hope for Merrick | Facebook
FacebookHope for Merrick
1.4K views1 week ago
Sanfilippo affects the entire body. #lovelogan #sanfilippo #body #cure #treatment | Love_logan07
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Sanfilippo affects the entire body. #lovelogan #sanfilippo #body #cure #treatment | Love_logan07
FacebookLove_logan07
135.6K viewsJun 1, 2024
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
What Causes Sanfilippo Syndrome | Cure Sanfilippo Foundation
Aug 8, 2023
curesanfilippofoundation.org
One thing is for sure after the death of Sam Sanfilippo – he will be missed. His employees at Villa Italia Ristorante in Oil City already miss him, and the Venango County community will surely miss him. “As much as the Pizza Villa is an institution, Sam was an institution himself,” State Senator Scott Hutchinson told exploreVenango.com's Ron Wilshire Monday. “He went out of his way to help people.” The restaurant is a local landmark, operating 24 hours per day, seven days per week. The tradition
5:38
One thing is for sure after the death of Sam Sanfilippo – he will be mis…
22.2K viewsApr 26, 2016
FacebookexploreVenango.com
9.7K views · 115 reactions | Muskego parents were given a life-changing diagnosis. Their 3-year-old girl has a rare genetic disorder with no cure, but the family is not giving up hope. MORE: https://bit.ly/3Bcmma1 | FOX6 News Milwaukee | Facebook
3:08
9.7K views · 115 reactions | Muskego parents were given a lif…
9.7K views2 weeks ago
FacebookFOX6 News Milwaukee
Capt. Annalisa Sanfilippo discuses her passion for aviation and the path that led her to become a USAF fighter pilot while the 144th Fighter Wing welcomes her as the unit’s first female fighter pilot. Sanfilippo, who just graduated F-15 Pilot Training June 14, 2024, is the first female fighter pilot with the 144th Fighter Wing, its 194th Fighter Squadron, and the California Air National Guard. (U.S. Air National Guard video by Master Sgt. Christian Jadot) California National Guard Air National G
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Capt. Annalisa Sanfilippo discuses her passion for aviation and the p…
9.8K viewsJun 17, 2024
Facebook144th Fighter Wing
What is the Prognosis of Sanfilippo Syndrome? | Cure Sanfilippo Foundation
What is the Prognosis of Sanfilippo Syndrome? | Cure Sanfilippo Foun…
10 months ago
curesanfilippofoundation.org
110K views · 1.8K reactions | Sanfilippo syndrome causes unique physical traits. This is why many of our kids look like siblings. #sanfilipposyndrome #rarebeauty | Saving Sadie Rae: Cure Sanfilippo | Facebook
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110K views · 1.8K reactions | Sanfilippo syndrome causes uniq…
88.5K views3 weeks ago
FacebookSaving Sadie Rae: Cure Sanfilippo
This has to be fate. Sanfilippo Syndrome occurs in 1 in 70,000 people. Our town has 16,000 people, and our neighborhood has maybe 50 people. Children with Sanfilippo syndrome share many physical traits and behave similarly. Hannah asked Sadie to be her flower girl as a precious tribute to her older sister, Lindsey, who left this earth far too early. We’re so grateful that Sadie has Hannah as a sister and friend. Thank you to Hannah and Marshall for including Sadie in your special day and for lov
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FacebookSaving Sadie Rae: Cure Sanfilippo
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Today is World Sanfilippo Awareness Day. Will you share th…
668.8K viewsNov 16, 2023
FacebookSaving Sadie Rae: Cure Sanfilippo
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Today we’re going to a funeral for a little girl who also had Sanfilippo …
201.3K viewsNov 28, 2023
FacebookSaving Sadie Rae: Cure Sanfilippo
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12K views · 317 reactions | Life with Sanfilippo Syndrome presents...
5.1K views1 month ago
FacebookCure Sanfilippo Foundation
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Meet Logan Pacl, a Teen With Sanfilippo Syndrome, aka ‘Childh…
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insideedition.com
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